The Preemie Growth Project

Sharing Vital Information About Nutritional Issues for Premature Babies & Special Needs Children


Study

Project Details FAQ


PROJECT DETAILS

Q: How many participants will be in your project?

A: As many eligible children as want to join through December 31, 2012.

Q: What do you expect to see as a result of this project?

A: A decrease in infant mortality rates, faster than expected achievement of growth and developmental milestones, and for children suffering from neuromuscular issues, healthy muscular weight gain, an increase in muscle tone and strength, and a decrease in hyper-spasticity.

Q: Is there any research backing up what you are studying?

A: Yes. This study builds on already established research, and the conclusions are based on medical textbook and established veterinary research. You can view some of it here: Science

Q: How did a non-medical professional figure this out?

A: Luck. You can view the videos on the home page for the details.

Q: Do you have any FDA approvals?

A: No, the compounds being used are “over the counter supplements” and as such, not under the governance of the FDA. Appropriate documentation as to content via assay has been obtained from the company providing product.

Q: What are the outcome that parents will be reporting and how often?

A: Parents are asked to give bi-weekly reports on any observed changes in appetite, weight, tone or strength, cognitive, and energy, as well as any general parental observations they think would be relevant to other parents thinking about trying this.

Q: Are there target cofactors within specific metabolic pathways targeted?

A: No. This is a parent driven project to determine if this nutritional approach (based on pg 631 of the Textbook of Pediatric Gastroenterology & Nutrition, among other sources) will continue to duplicate the results experienced by the initial children in the project. That is an excellent question, however, and hopefully someday a well-paid researcher will answer it.

Q: When did this start?

A: Premature babies have been benefitting since late 2009; children with neuromuscular issues have been being recruited since June, 2012.