Ha! I say HA!
The last time we updated our webpage was 2013, and in “internet years” that was the equivalent of the 19th century. A clean, fresh look, with the most current information (including the long awaited results from the “Phase 2” feasibility study) was long over due. But how to do it? How does one explain an exciting paradigm change that affects so many children in ways that make sense to so many different audiences? Do we break the information down by age? Specific medical condition? Education and experience level? And how do we make it “visually flow” in a reasonable manner?
We have parents, medical providers, public health and special needs advocates all coming here and we need to make sure we ‘speak the language’ they are looking for – Not An Easy Task!
But slowly, things are getting done. “Just get something UP – we can fix it later!” is the answer to the proverbial writer’s block issues that periodically overwhelm those of us on the other side of this page. As an all volunteer organization, we are extremely lucky with the quality of people who step up on a regular basis to make sure we provide the most accurate information we have to help your children —
Your children: the reason this page exists. As one mom told me today, “we parents have to stick together!” She is right. At the end of the day, the children are what matters, and sleep is always optional. 🙂
Best to All,
Preemie Growth Project